Fecking preach. Especially because over half the crap in that hour was idiotic.
[image of a tweet by @trishgreenhalgh saying
“Doctor: Don’t confuse your Google search with my 6y at medical school
Patient: Don’t confuse the 1-hour lecture you had on my condition with my 20y of living with it.”]
And especially because a lot of chronic illnesses / invisible disabilities are still doubted by many doctors, despite evidence that these illnesses are very much so real.
If doctors were trained properly on chronic illnesses in the first place, it wouldn’t take people with conditions like ME/CFS or Dysautonomia or EDS (just for example), years and years to get a diagnosis. I commonly hear people saying it took 5+ years of suffering, of doing all they could whilst being patronised by doctors and getting told “nothing is wrong with you”, to actually, finally get a proper diagnosis. 5 years to get a diagnosis is fucking unacceptable, and the main reason it is taking most people this long to get that diagnosis, is purely because of lazy doctors not doing their jobs.
Moral of the story: some doctors are absolute arseholes who act like the workload finished the moment they graduated med school, instead of actually being proactive in their duty of care.
8 years my dudes, 20 doctors later I walked in with a binder full of test results and an idea of what my diagnosis could be and the guy was just like… yeah that’s probably it.
Living with a disease makes you an expert on how you personally are affected in that particular moment, but it doesn’t make you an expert on all facets of the disease for all time.
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